Adult Patient Testimonials: Hear What They’re
Saying About XEOMIN
Jan's Story: Cervical Dystonia
“I am getting relief! My head isn’t pulling to the right as often, the muscles in my neck don’t feel as tight and painful, and my doctor has noticed a positive change as well.”—Jan, an adult with cervical dystonia treated with XEOMIN
Individual results may vary.
After being diagnosed with cervical dystonia, my life was turned upside down. I felt like a freak and so self-conscious and uncomfortable. My doctor made me feel like it was all in my head or psychosomatic, so I went on for several years struggling with it on my own.
That was until I discovered XEOMIN. Before XEOMIN, I tried surgical options, nerve surgeries. They helped for a while, but when my symptoms started returning, it was time to do something else. I was the one who mentioned XEOMIN to my neurologist. He said, "Sure, we will give it a try."
After the first set of injections, XEOMIN started to help. Without XEOMIN, I would be extremely uncomfortable, and my head would be falling down toward my shoulder. When I am on treatment with XEOMIN, I have some relief from the pain and tension and can focus more on other things in life that I enjoy. I feel it is important to share my story so people know that they are not alone. After all, we are all in this together.
Every patient's experience with XEOMIN will vary, and there are potential risks and side effects with XEOMIN. Talk to your healthcare provider to see if XEOMIN is right for you.
My head turned purely to the right; I had a lot of trouble bringing it back to center and a horrible time bringing it to the left. So, my life was turned upside down. I was so self-conscious and uncomfortable that I ended up having to leave my job. I would date and be teased about it. It really destroyed my self-esteem. I felt like a freak; it was so obvious. And it also started to restrict me. There was no way I could ride a bike, read, walk, drive, or eat without it being extremely difficult.
I was sort of fortunate in that I didn't have excruciating pain, but it is the pulling feeling and twisting motion that you're constantly fighting. It becomes exhausting, and after a while, you pretty much just have an ache all the time. Even if I were to let my head go where it wanted to go, it was still such an abnormal position. Being in that abnormal position long enough, you're going to be really uncomfortable.
Michelle's Story: Cervical Dystonia
Michelle is another patient with cervical dystonia. Watch her story, and find out how XEOMIN fit into her treatment plan.
Dona’s Story: Blepharospasm
“Now that I am in more control of my eyes, I am able to do some of the things I had not been able to do because of my blepharospasm.”—Dona, an adult with blepharospasm treated with XEOMIN
Individual results may vary.
After being diagnosed with blepharospasm, my life began to change. I lost control of movement in both eyes, developed sensitivity to light, and was in pain. I had to stop working and driving.
I began seeing many different doctors and not really getting answers. I realized I had to be my own advocate. I knew that if I was going to have this disorder, I wasn't just going to settle. I can't shut myself away. I can't let this take over my life. I run a nonprofit and a store, and I try to keep really busy. Finally, after 2 years, I was diagnosed by a neurologist. At first, I was on another neuromodulator, but when XEOMIN came out, I wanted to try it.
XEOMIN helped me. I can now keep my eyes open, whereas before treatment, I had no control. I have less discomfort at work, and have relief from my blepharospasm symptoms. I have my own business, a nonprofit, and now that I have control over my eyes again, I feel that I am giving something back. I have defined a new normal for my life. There are still things I used to do that I can't do now, but at least I am not letting my condition define me.
Every patient's experience with XEOMIN will vary, and there are potential risks and side effects with XEOMIN. Talk to your healthcare provider to see if XEOMIN is right for you.
The symptoms before treatment were a lot of facial twitching, which I thought maybe was a tic. I lost control of my eye movement in both eyes. My eyes became very sensitive to light, sunlight, any kind of hard lighting. It became worse and worse. I kept thinking: This has got to go away; this can't stay this way for the rest of my life; something is seriously wrong. And there is pain. It's like there is always sand in my eyes. I don't cry like a normal person; my eyes don't shed tears. So, when I actually do cry, it is very painful; my eyes are always very dry.
Does this seem familiar?
Emma and Jacob* are childrenwith chronic sialorrhea
*Images and fictionalized stories are for illustration
purposes only. Not actual patients.
