I was working at my job at the time. It was in an office and it felt like someone threw a light switch and my eye started to spasm and was blinking really bad, and I realized I just couldn’t control it. That’s when the journey started.
How difficult it can be living as an adult with blepharospasm
The symptoms before treatment were a lot of facial twitching, which I thought maybe was a tic. I lost control of my eye movement in both eyes, so I had to stop driving and working. My eyes became very sensitive to light, sunlight, any kind of hard lighting. It became worse and worse. I kept thinking this has got to go away, this can’t stay this way for the rest of my life, something is seriously wrong. And there is pain. It’s like there is always sand in my eyes. I don’t cry like a normal person, my eyes don’t shed tears. So when I actually do cry it is very painful; my eyes are always very dry.
Individual results may vary.
I began seeing many different doctors and not really getting answers. I realized I had to be my own advocate. I knew that if I was going to have this disorder, I wasn’t just going to settle. I can’t shut myself away. I can’t let this take over my life. I run a nonprofit, a store, and I try to keep really busy.
Finally, after 2 years, I got diagnosed by a neurologist. At first I was on another neurotoxin, but when XEOMIN came out, I wanted to try it.
It helped me. I can keep my eyes open right now, where before I had no control… to have to keep trying to keep my eyes open was exhausting. Now I have better control.
Now that I am on XEOMIN, I have less discomfort at work. Thankfully, because I have my own business, a nonprofit, I can make my own hours, which is helpful when you have blepharospasm. I can be there in the morning when my eyes are healthy, or I can be there in the evening after the store closes. I have relief from my blepharospasm symptoms now and am helping other people. I feel that I am giving something back. Also, with treatment and my e-reader, I can read without straining as hard to keep my eyes open. So I have sort of defined a new normal for my life. There are still things I used to do that I can’t now, but at least I am not letting my condition define me.
NOTE: Individual results may vary.
Read the Medication Guide before you start receiving XEOMIN® (Zeo-min) and each time XEOMIN is given to you as there may be new information. The risk information provided here is not comprehensive. To learn more:
XEOMIN is a prescription medicine used in adults:
It is not known if XEOMIN is safe and effective in children under 18 years of age.
XEOMIN may cause serious side effects that can be life threatening. Call your doctor or get medical help right away if you have any of these problems anytime (hours to weeks) after treatment with XEOMIN:
These symptoms can happen hours to weeks after you receive an injection of XEOMIN. These problems could make it unsafe for you to drive a car or do other dangerous activities.
Do not take XEOMIN® if you: are allergic to XEOMIN or any of the ingredients in XEOMIN (see the end of this Guide for a list of ingredients in XEOMIN), had an allergic reaction to any other botulinum toxin product such as rimabotulinumtoxinB (Myobloc®), onabotulinumtoxinA (Botox®, Botox® Cosmetic), or abobotulinumtoxinA (Dysport®) or have a skin infection at the planned injection site.
Tell your doctor about all of the medicines you take, including prescription and over-the-counter medicines, vitamins and herbal supplements. Talk to your doctor before you take any new medicines after you receive XEOMIN.
Using XEOMIN with certain other medicines may cause serious side effects. Do not start any new medicines until you have told your doctor that you have received XEOMIN in the past. Especially tell your doctor if you:
Ask your doctor if you are not sure if your medicine is one that is listed above.
Know the medicines you take. Keep a list of your medicines with you to show your doctor and pharmacist each time you get a new medicine.
XEOMIN can cause serious side effects including: See "Warnings."
The most common side effects of XEOMIN in people with chronic sialorrhea include:
The most common side effects of XEOMIN in people with upper limb spasticity include:
The most common side effects of XEOMIN in people with cervical dystonia include:
The most common side effects of XEOMIN in people with blepharospasm include:
These are not all the possible side effects of XEOMIN. Call your doctor for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088.
Medicines are sometimes prescribed for purposes other than those listed in a Medication Guide. You can ask your pharmacist or doctor for information about XEOMIN that is written for health professionals.
Active Ingredients: botulinum toxin type A
Inactive Ingredients: human albumin and sucrose
For more information, please see XEOMIN full Prescribing Information and Medication Guide.