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Hear from a XEOMIN Patient with Adult Blepharospasm - XEOMIN®

What’s It Like Being An Adult With Blepharospasm

How adult with blepharospasm symptoms started

I was working at my job at the time. It was in an office and it felt like someone threw a light switch and my eye started to spasm and was blinking really bad, and I realized I just couldn’t control it. That’s when the journey started.

How difficult it can be living as an adult with blepharospasm

The symptoms before treatment were a lot of facial twitching, which I thought maybe was a tic. I lost control of my eye movement in both eyes, so I had to stop driving and working. My eyes became very sensitive to light, sunlight, any kind of hard lighting. It became worse and worse. I kept thinking this has got to go away, this can’t stay this way for the rest of my life, something is seriously wrong. And there is pain. It’s like there is always sand in my eyes. I don’t cry like a normal person, my eyes don’t shed tears. So when I actually do cry it is very painful; my eyes are always very dry.

Individual results may vary.

How diagnosis happened and XEOMIN treatment began

I began seeing many different doctors and not really getting answers. I realized I had to be my own advocate. I knew that if I was going to have this disorder, I wasn’t just going to settle. I can’t shut myself away. I can’t let this take over my life. I run a nonprofit, a store, and I try to keep really busy.

Finally, after 2 years, I got diagnosed by a neurologist. At first I was on another neurotoxin, but when XEOMIN came out, I wanted to try it.

How XEOMIN has helped me

It helped me. I can keep my eyes open right now, where before I had no control… to have to keep trying to keep my eyes open was exhausting. Now I have better control.

Now that I am on XEOMIN, I have less discomfort at work. Thankfully, because I have my own business, a nonprofit, I can make my own hours, which is helpful when you have blepharospasm. I can be there in the morning when my eyes are healthy, or I can be there in the evening after the store closes. I have relief from my blepharospasm symptoms now and am helping other people. I feel that I am giving something back. Also, with treatment and my e-reader, I can read without straining as hard to keep my eyes open. So I have sort of defined a new normal for my life. There are still things I used to do that I can’t now, but at least I am not letting my condition define me.

NOTE: Individual results may vary.